Please click here to create a new account.
Once you have created your new account please complete the membership application form and return it to registry@i-dsd.org. Accounts will be activated upon receipt of payment.
I-DSD/I-CAH Membership Fee:
Full Membership:
Standard annual fee full member – €100 (Low /Middle Income: €50)
Discounted annual fee full member for those who are known co-authors on full papers published within the last 3 years of membership using data from the registries: €50 (Low/Middle Income: €25)
Benefits:
– Discounted fee to the scientific meeting of all condition-specific registries supported by the Office for Rare Conditions, Glasgow
– Eligibility for travel awards and presentation prizes at the scientific meeting of all condition-specific registries supported by the Office for Rare Conditions, Glasgow
– Members’ directory of all condition-specific registries supported by the Office for Rare Conditions, Glasgow
– Newsletters of all registries supported by the Office for Rare Conditions, Glasgow
– The right to apply for a position on the Steering Committee or the Scientific Panel of all condition-specific registries supported by the Office for Rare Conditions, Glasgow
– Access to the members only section of the condition-specific registry supported by the Office for Rare Conditions
– Provision of clinical benchmark data for patient reported outcomes
– Free advice for initial research related enquiry to any registry supported by the Office
– Nominate auxiliary members
Associate Membership:
Reduced annual fee for those who would like to search other users and centres but not data – €50 (Low/Middle Income: €25)
Benefits:
– Discounted fee to the scientific meeting of the condition-specific registry
– Eligibility for travel awards and presentation prizes at the scientific meeting of the condition-specific registry
– Member’s directory
– Newsletters and news alerts
– Access to the members only section of the website
– Fee for submitting enquiry to any registry supported by the Office
Auxiliary Membership:
This membership level applies for other users at a centre where a user is registered as a Full Member.
Benefits:-
– No membership fee
– Confirmation/support of Full Member required
– Discounted fee to the scientific meeting of the condition-specific network for up to 3 auxiliary members from each centre
– Eligibility for travel awards and presentation prizes at the scientific meeting of the condition-specific registry network
– Member’s directory
– Newsletters and news alerts
– Access to the members only section of the website.
Patient/Parent Membership:
Benefits:-
– No membership fee
– Access their own data
Please click here to create a new account.
I-TS 